Everything I know about being a parent to a child with down syndrome….. (Mom took over!)


Here it is:

”          “

I don’t know anything about being a parent to a child with down syndrome. I can’t tell you about parenting: a son with a lazy eye, a daughter with my sarcasm or a son who is an open nerve. BUT…..I do know…..

Beyond food, shelter and clothing, children need love, understanding, patience and guidance. It’s a parent’s job to help their children reach their full potential. Whatever that may be.

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I’m Back!


Did you miss me? I’ve been gone awhile. Just like with most stuff, it’s mommy’s fault. Maybe daddy’s fault too. I don’t know. It’s not mine. Do you want to hear all about my adventures? Okay….First…

Back1

Oh Shitake Mushroom…..Mommy is making me go to school. Guess you don’t get to hear my stories now. See what I mean. Not my fault!

Back2

Big Game


I got the ball.

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It’s mine.

I’m going for the pass.

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And it’s up.

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Another sweet catch.

Touchdown!

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The big game made me tired.

It’s hard being an athletic superstar.

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But when you are…..

You can afford to buy big game, like elephants

…..and take naps with them.

Siegfried and Roy? Whatever!

Justice and Gramma Dee 012.NEF

Hoops With My Homey


So…..Here’s a little taste of what I did yesterday after speech therapy. And my therapy…….I rocked it by the way, saying all kinds of cool things like pop, bubble, ball and beep beep. I also signed the word play. 

I know. I know. Don’t hate!

Well…..mommy and daddy took me to play. Here’s a nibble.

My Day On Social Media


Okay…..Let’s see what’s going on with the internet today.

What? Mommy and her friends are trying to be cool making duck-lip selfies. Old people are crazy!

I can do better.

How you like them duck-lips?

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I just laughed so hard I farted.

“Here’s a list of things you may not know about me.”…..What kind of status is that? If people wanna know things they ask. Someone’s trying too hard.

Oh snap! Miley Cyrus bleached her eyebrows.

HAHAHA….. I’m gonna pee myself. I never knew a daddy ripping up newspaper was so hilarious.That baby is going bonkers.

Oh no she didn’t!

Now how do I make that smiley face thing? I just don’t understand how people make all those crazy symbols. I’m so behind with technology.

What? There’s an event I wasn’t invited to?

I see the pictures! You can’t deny it happened.

And…Why won’t you ever like my Facebook status???

I so hacked my sister’s account. This is gonna be awesome.

And…..

I’m defriending you and you and you….well…I’m blocking you.

Hmmmmm. I might have to rethink my political allegiance.

She’s fixing THAT for dinner??!! YUCK!” I don’t believe for five seconds her kids liked it like she said. Maybe the doggie did.

Dudes need action! (Day: 40)


After missing time for being sick……I had to go back to school today. We had pancakes for lunch so that was pretty cool. What was even cooler…..my mommy and daddy brought me and my wife to the park.

Here I am swinging with the ball and chain. We were having a good time….at first. Then she started talking about wanting new clothes and why don’t I have a job.

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I was sinking deeper and deeper into darkness. I just wanted to throw a toy at myself….over and over.

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For a little bit…I thought about jumping from the swing….just to make it all stop.

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Then I remembered I was a dude. And dudes don’t drop out of swings just because girls are hassling them. Dudes act crazy and find excitement.

I can’t drive…..so I decided to go fast on the slide instead.

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Look at me! No hands.

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Oh poopy! No one is here to catch me!

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I can’t go rock climbing, but this looks easy.

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Hmmm…..Not too bad.

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Should my foot be on this bar or the one under it?

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Shitake mushroom! Mommy! Daddy! I need a little help here.

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LESSON OF THE DAY:

Be the dude that you are and don’t swing with your wife. It’s not as much fun as it might seem.

Are you in the right circles? (Days: 33 & 34)


DAY 33: Here I am working on my circle skills. This is not trickery courtesy of my mommy. That is my handiwork people.

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No school on Tuesday cause the grownups around here had to use the schools to do something called voting. They had to go fill in someone else’s circles. Mommy and Daddy must have been embarrassed because they had to hid behind a curtain to do it. Then someone gave them a sticker when they were done. Sounds crazy to me.

I hide and do things. I don’t get stickers.

DAY 34: This was Wednesday. Today was picture day at my school. I don’t need to worry about my looks, so I decided to keep working on my circle skills.

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Time for school.

Bringing my pad with me.

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Oh shitake mushroom!

Who put that drop there?

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It’s good.

I’m up.

I got this.

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Okay. Can you put the camera down and help me down these steps?  You know I can only keep my eyebrows up like this for so long.

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Cheers At Church


This is me…..today…..after church.

Church

I went on stage with my class (2/3-year-olds) and we sang a song and held up signs. Okay….I didn’t hold up any of the signs and I didn’t sing the words, but I did do some other things.

What I did do:

  • I stood up on stage with my class. No one held me or my hand.
  • I didn’t get scared with everyone watching me.
  • I didn’t cry when the kid beside me started to wail.
  • I didn’t sing the words, but I moved my lips. I think that’s what most people do on stage.

 

In the end…..everyone cheered and clapped.  

 

BE AWARE: I am a performer. BUT….You probably knew that.