Down Syndrome

Potty Training: Day 3 (AKA: We’ll see about that!)

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“Hey mommy!  I’m smiling at you in a super

cute way and I signed please.”

Potty1

“Can I have some Fritos?” (…still smiling…)

Potty2

“What? I have to go potty first? I mean

toilet. I forgot we were being super fancy

pantsy with more grown up with words.”

Potty3

“When this timer thingy goes off, I’m

staying put. You’ll see.”

Potty4

“Timer thingy just went dingy. Uhhh. I

wonder if mommy remembers.”

Potty5

“Uh oh! Now my talking thingy is saying

Toilet, Toilet. Mommy heard that. I’m not

seeing a way out of this.”

Potty6

“At least I get my iPad. Hey mommy.

How about some me time? Back away from

the toilet.”

Potty7

“Okay. A little bit further.”

Potty8

“That’s better.”

Potty9

“Okay. So what if I went through a few

hundred underpants today. Girls aren’t the

only ones who get to change over and over again.”

Potty10

 

 

Fooled Into School 3 Weeks Ago

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Cool? Spool? Uh….What?

Say What

 

Yeah….School. That’s what it sounded like.

That's What I though

 

No thanks! I’m kind of booked up. I’m hanging with my dog.

Hanging with My Dog

 

I’m running with sticks, but only sharp ones.

Running With SticksI

 

I’m working on my dance moves. You’d be surprised how much fine tuning they need.

Working on my dance moves

 

(Okay…..That did not work.)

Not Sure How To Get Out

 

Plan A: (smile)

 

I'll Use My Smile

 

Plan B: (intimidate)

I'll intimidate

 

Plan C: (heartfelt plea) “Mommy. You already doubled my speech each week and just about quadrupled my OT. Aren’t you worried you might be overworking my fragile self? Plus, you know I’ll miss you. School can’t give hugs like you. And….you’re so pretty, even when you aren’t.”

heartfelt speech

 

Serious?! Three days a week??!! And you’re going to work with me at home too??!! Well…..I take back that pretty part.

not working

 

THEN IT WAS THE MORNING OF THE FIRST DAY OF SCHOOL:

Uh…..So you slept on it and still think it’s a good idea?

serious about school

 

Mommy. My dinosaur might attack you if I’m not home to hold him back.

dinosaur no

 

(None of it worked, so I did what people nowadays seem to do to get what they want. I took my clothes off. ……. Mommy put them back on. I didn’t think that far ahead.)

took off my clothes

 

Be aware. Be very aware. (PreK: Day 14)

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October is National Down Syndrome Awareness Month.

To bring awareness, I’m gonna share something everyday that you may or may not know already. Don’t worry though……You can still stalk me at preschool. Scratch that. You can stalk my adventures on this blog. Stalking in real life will get you arrested you big dopey! And….That would be the nicer option.

This is me at about 6:30 this morning. Even in the most coffee necessary timeframe for most Americans, I am up and using technology. Okay. I might not have pants on, but I’m guessing a lot of people weren’t wearing any at that time either.

iPad

BE AWARE:

I can use an iPad just as well, if not better than any kid my age. I don’t lick it. I don’t try to eat it and I don’t throw it. It’s not like I’m an animal. I’m a responsible human being, who understands it’s a privilege to have electronics. AND……My family understands that keeping their limbs intact is a privilege they will quickly lose if they mess with my iPad privileges.

A Little Foul Play: Preschool Day 3

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There’s no way I’m carrying this thing down those steps.

I don’t even walk down these steps.

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Well Thomas, I never knew you were a flying train.

Nice landing. My juice box is still in one piece.

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Okay. I’ve got this now. Feels a little lighter than yesterday.

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“Oh my gosh! I can’t believe what I’m seeing!”

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“Mommy! Daddy! It’s over there.”

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My fake “look at that” worked. I’m making a run for it.

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“Uh…..I don’t remember running. I was just stretching my legs.”

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This is poopy! I need longer legs.

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Someone’s Getting Schooled! (Day: 1)

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So my mommy has this idea about taking a picture of me every single day of my school life and posting it here. We’ll see if she can follow through.

If she does (pick one):

  • Sorry!
  • Glad you dig me.

If she doesn’t (pick one):

  • Lucky you.
  • I’ll send you a sympathy card.

My first day of preschool was yesterday. I missed the first week because I’m too cool for school and I wanted to be fashionably late. OR…..It was because I had my tonsils out and other stuff. I like the first reason better.

Justice 1st Day School

I have no clue my parents are getting ready to abandon me and leave me in the hands of total strangers. It’s just another photo op for me.

I’ve got your “Dark Passenger” Dexter Morgan.

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Rumor has it, one of my mommy’s favorite shows (Dexter) might be ending. Well…..I’m not sure why it’s okay to like someone who does bad things, but he doesn’t have the market on darkness or codes.

I have my own “Dark Passenger” that makes me go a bit mad. If someone eats all my Cheetos, changes my favorite channel, or tells me to go to bed…….well….I’m just saying……things can get ugly. But it’s because of important stuff like I just said, so I have a code too.

AND…..Unlike Dexter, I didn’t muck things up by getting married and having a kid. Well, maybe I did get married that one time (Click here for evidence of my possible nuptials.) Plus, he thinks he’s slick because he’s a blood splatter guy at the police department. BUT….I’m as adorable as heck. Who would ever suspect me?

CHECK OUT MY AUDITION REEL:

He's dead

“Do I need a warning label or what?

You knew I’d snap if you touched my snacks.”

Looks good

”Little pieces? I’m seeing why that makes sense now.”

Out of Box

“Holy macaroni. I hope that was a postmortem spasm.”

Trying to Pack it down

“Okay. I’m not allowed to use sharp objects….so….I’ll just have to keep patting him down until all the air comes out. Then he’ll fit.”

You aint see nothing

“Nothing to see here. I’m just taking the trash to the dumpster.”

Anyway…..If you’re listening Showtime, I think you could definitely replace Dexter with a new show. You should call it Justice or Just-Ice. Think about it. My agent’s name is Mommy. She’ll be waiting for your call.

Buddy Walk with me.

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I’m Justice and I’m four months shy of the Big Three. That’s years if you weren’t sure. Let me tell you what’s going on here. My family is coming with me and participating in the Buddy Walk (for Down Syndrome) in Northern Virginia this September. Are you ready to hear our team name? We are the “Justice League”. Yep. I think that’s a pretty cool name my mommy’s friend picked.

Here is the 411 if any of you still use that nowadays.

I’m walking with my family in the Northern Virginia Buddy Walk, to show my support for the more than 350,000 individuals with Down syndrome in the United States. I want to do my part to make sure that each individual is given every opportunity to reach their full potential.

Every step I take, every dollar I raise will help ensure that each individual with Down syndrome in the United States will be able to do just that. Last year alone, over $11.75 million dollars were raised nation-wide for local and national programs.

Your involvement in the Buddy Walk — by walking with me or by sponsoring me — will make steps for a brighter tomorrow for all individuals with Down syndrome.

Thank you for supporting me — and all individuals with Down syndrome.

Ignoring the need to give? Well…”Ain’t nobody got time for that.” I’m Just-Ice, and I approve this message.

DONATE BY FOLLOWING THIS LINK

Please select Team Name: Justice League or Participant: Justice Lyons

SPREAD THE WORD TO OTHERS AND LET’S DO THIS!!!!!!

How Batman ended up with Robin.

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Dinosaurs seem really cool. I thought it would be great to have him as my partner in fighting crime, but………

  • it was really hard to get him into the Batmobile
  • he didn’t really listen to what I told him
  • he wasn’t handy when it came to grabbing people (little arms)
  • he kept eating the bad guys, which turned into a public affairs nightmare
  • he wanted his name to have top billing

Did we go to Vegas? I think I got married!

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So……I have a friend, a friend that happens to be a girl. Her name is Jules and she’s a super-cute blonde. I heard blondes have more fun, so I thought we would have a great time hanging out on our play date. BUT……I noticed some changes in our relationship.

You know, I wasn’t born yesterday. I’m 2.5 years-old and I’ve heard some things. Like, I know my mommy and daddy are married and now I’m wondering: Am I married too?

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Justice Dude

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My mommy is really sorry.

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Mom is taking over today. I told you she would from time to time.. She said I needed to skedaddle, so I’ll do my best. “La, la, la….I’m not listening.

Justice in Cubby 001

 

For those of you who follow or read me elsewhere, this will be old news. Sorry about that! For those of you who are hearing this for the first time……stay where you are.

My friend (Stirling Gardner) created a site: An Open Apology. Anyone is welcome to write and submit an apology letter, anonymously or not. It doesn’t matter who the recipient is, what you’re sorry for, or what tone you write in. It just matters that you mean it.

HERE IS MY SUBMISSION (apology to Justice):

Although these words will never meet your ears, I’m apologizing anyway.  You are and will always be protected by what I felt that day, in that moment. After all, I’m a mother. I’m your mother.  It’s my job to protect you.

Admitting something I’m deeply ashamed of isn’t easy. Even your father doesn’t know this.  How could I tell him? He didn’t share my feeling. He didn’t share my fear. I didn’t want to look less in his eyes or risk losing a piece of his heart. But, this isn’t about him. It’s about you and me.

During my pregnancy, nothing was out of the ordinary. Although it had been eight years since your sister was born, it was like riding a bike. The only difference:  I was deemed to be “high risk” because of my “advanced maternal age”.  At 40, I was five-years deep into the label.   I didn’t mind. I felt great.

Besides the standard “what sex is your baby” ultrasound, (I’m sorry my heart sank a bit when they told me you were a boy. Your sister has proven that raising one girl is more than I can handle.) I was advised to get a genetic one due to my ancientness.

TO VIEW THE REST, GO TO: Mom Apologizes to Son with Down Syndrome